At the Third NACCHO HTLV-1 Workshop held on 4 June 2025 in Alice Springs, Dr Nick Vandegraaff from NRL presented on key developments in HTLV testing, covering assay innovation, improved test accessibility, and the creation of reference materials and quality assurance programs to help address global testing gaps. It was a privilege to share the progress we’ve made in this critical area, with further exciting developments currently underway at NRL.

The workshop also marked the launch of the new Australian Clinical Guidelines on HTLV-1 for Aboriginal Primary Health Care Settings. The guidelines focus on Central Australia where HTLV-1 prevalence is known to be high, and aim to support evidence-based, culturally safe testing, prevention and care. These guidelines recognise the challenges faced in remote Aboriginal communities, including access to breastfeeding alternatives and the need for culturally appropriate support. Discussions also highlighted the critical role of ongoing longitudinal studies in understanding the long-term impact of HTLV-1 on Aboriginal health. The workshop served as a powerful reminder of the importance of continued collaboration, culturally informed care, and sustained investment in research and diagnostic innovation.

To learn more about NACCHO:  NACCHO